Your knowledge about your daily care matters.

Indiana University School of Medicine is conducting the HERO-2: Home Reported Outcomes Study,Indiana University School of Medicine is conducting the HERO-2: Home Reported Outcomes Study, powered by Folia and funded by the CF Foundation. This is an observational study focused on collecting everyday observations that individuals with CF and their families make in the course of their daily lives.

Participants will use the Folia app to collect weekly info on treatment use and symptoms, complete monthly check-ins through the app, and will be compensated up to $260 for participation over a period of 12 months.

Study data collected through Folia will be linked to the CFF Patient Registry. No additional clinic visits are required for this study. MSU CF Center is serving as a referral center only and is not performing or responsible for this study.  

Eligibility Requirements

● U.S.-based adult diagnosed with CF, ora Parent/Guardian of a child 12+ years diagnosed with CF

● Using Trikafta for an on-label indication

● Installation and weekly use of the Foliaapp or Folia web on a personal computer

● Cannot be post-transplant

● Cannot be enrolled in the randomized portion of the SIMPLIFY study

What will participation involve?

● 12-month study participation

● Each week, log into the app to provide treatment use & symptoms data for at least 3 days (this takes approximately 90 seconds)

● Each month, complete a 10-minute survey on changes to your care & health

● Support is available throughout the study period, however no additional clinic visits are required. 

Enroll in the HERO-2 study today!

Enter Invite Code H2135 into the Folia app.  This code is specific to the MSU CF Center.

If you have any questions about the Folia app, please contact connie@foliahealth.com. 

For information regarding the study, please contact the Principal Investigators at cyndbrow@iu.edu