News and Events

Dear people with CF and families,  

 

It is my understanding you received a letter informing you of the closure of our CF Center.  Please know we had every intention of notifying you as a team and it had been communicated we would be allowed to do this.  I do not know where the wires were crossed in MSU Health Care but I apologize.  There will be further communication. The decision to close the CF Center was not the choice of the CF team nor the providers and was a decision made by MSU Health Care leadership.  

 

Key Points:

  • MSU Health Care is closing the Pediatric Pulmonary Program and Cystic Fibrosis Center.
  • Thomas, Dr. Masnyj, and Cassandra Grimes are committed to continuing to provide care to people in mid-Michigan.
  • The clinic will be closing 6/1/25 however, staff will be available for refills 30 days after the closure. All additional refills or authorizations after this date will require you to be seen at the new location first. Please check if you will need a new prescription as soon as possible so we can send it before we close!
  • We will continue to provide care for people with cystic fibrosis in Lansing in partnership with Corewell Health and Helen Devos Children’s Hospital.  We are trying to keep as many of our team members together as possible. 
  • We anticipate seeing patients again in July at our new location. You may need a new referral because this is a different health care organization.

 

Our New Location

Corewell Health Pediatric Pulmonology - Lansing

Pediatric Specialty Care Clinic

3220 Discovery Drive Suite 210, Lansing, MI 48910

Please feel free to contact a team member of MSU CF Center at (517) 884-8600 or via the portal to address any questions or concerns you have. I understand this comes as surprising and stressful news and we will do everything we can to ease the transition.

 

Sincerely,

Ryan Thomas, MD

Chief, Division of Pediatric Pulmonology

Director, Michigan State University Cystic Fibrosis Center

Associate Professor, Department of Pediatrics and Human Development

Michigan State University College of Human Medicine 

For June 7 and 8, the Michigan Department of Environment, Great Lakes, and Energy issued an air quality alert in 28 southern Michigan counties covering much of the SE portion of the state. This is in response to the U.S. EPA’s Air Quality Index indicating that PM 2.5 is at “red” to “orange” unhealthy levels.

This air quality is a health concern, particularly for people most sensitive to particulate matter.

 For people with heart or lung disease, older adults, children, and teens it is suggested to take the following steps to reduce exposure:

  • Avoid strenuous outdoor activities.
  • Keep outdoor activities short.
  • Consider moving physical activities indoors or rescheduling them.

For everyone else:

  • Choose less strenuous activities (like walking instead of running) so you don’t breathe as hard.
  • Shorten the amount of time you are active outdoors.
  • Be active outdoors when air quality is better.

Live color-coded air quality conditions along with steps to protect your health can be found at the AirNow website and mobile app.

The US Food & Drug Administration has approved TRIKAFTA® (elexacaftor/tezacaftor/ivacaftor and ivacaftor) for the treatment of cystic fibrosis in patients aged 2 years and older who have at least one F508del mutation in the cystic fibrosis transmembrane conductance regulator (CFTR) gene that is responsive to TRIKAFTA!!!

Bonnell Foundation Education Day

Free lunch, free event, priceless information and parent mingling.  

On arrival parents will mingle. They will talk about what the CF community is advocating for, and hear from guest speaker, Diane Shader Smith. Diane will talk about the importance of phage therapy, and how it could have saved her daughter. Mallory died from CF when she was 25 years old. She talks about the diary her daughter left behind and how she made it into a book and later it inspired a documentary.

Thanks to a donation the Bonnell Foundation will pay $15 toward your gas and parking.

Register here: https://thebonnellfoundation.org/event/education-day/

 

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