Welcome

Important Update: Clinic Relocation and New Contact Information

Dear Patients and Families,

Thank you for the trust and respect you have shown our team over the years. We are writing to inform you that our previous program is now officially closed. We will not be able to provide medical care or advice until you are seen at our new location with Corewell Health Lansing.

We anticipate beginning to see patients on July 21st. At this time, cystic fibrosis clinics are scheduled for Fridays, with pediatric clinics in the morning and adult clinics in the afternoon. There will be some flexibility for pediatric visits.

Our New Location:
Corewell Health Pediatric Pulmonology – Lansing
Pediatric Specialty Care Clinic
3220 Discovery Drive, Suite 210
Lansing, MI 48910

https://corewellhealth.org/locations/LOC0000193846/corewell-health-pediatric-pulmonology-lansing

Team Updates:
As of today, our team members Cassandra Grimes, NP; Theresa Daggett, RT; Wendy Bouck, RT; and myself have officially joined Corewell Health. Our nurse, Ashlee, is in the final stages of the interview process. Dr. Masnyj is currently completing his credentialing, and his agreement to participate in the program has been signed.

Unfortunately, Steve and Kent have chosen to remain in their current positions and will not be joining us at Corewell. A position for a dietitian has been posted, and we anticipate a social worker position will be posted soon. Corewell has appointed one of their infectious disease physicians to replace Dr. Schein in the clinic, though Dr. Schein will continue to see patients at Sparrow if needed. Sam Cassisi, our gentic counselor, is also going to be replaced with an existing Corewell team member.  We will miss working with them all deeply. 

We appreciate your understanding and patience during this transition.

Ryan Thomas, MD

Chief, Division of Pediatric Pulmonology

Director, Michigan State University Cystic Fibrosis Center

Associate Professor, Department of Pediatrics and Human Development

Michigan State University College of Human Medicine 

MSU Health Care Closing the Pediatric Pulmonary Program and Cystic Fibrosis Center

Dear people with CF and families,  

It is my understanding you received a letter informing you of the closure of our CF Center.  Please know we had every intention of notifying you as a team and it had been communicated we would be allowed to do this.  I do not know where the wires were crossed in MSU Health Care but I apologize.  There will be further communication. The decision to close the CF Center was not the choice of the CF team nor the providers and was a decision made by MSU Health Care leadership.  

Key Points:

• MSU Health Care is closing the Pediatric Pulmonary Program and Cystic Fibrosis Center.
• Thomas, Dr. Masnyj, and Cassandra Grimes are committed to continuing to provide care to people in mid-Michigan.
• The clinic will be closing 6/1/25 however, staff will be available for refills 30 days after the closure. All additional refills or authorizations after this date will require you to be seen at the new location first. Please check if you will need a new prescription as soon as possible so we can send it before we close!
• We will continue to provide care for people with cystic fibrosis in Lansing in partnership with Corewell Health and Helen Devos Children’s Hospital.  We are trying to keep as many of our team members together as possible. 
• We anticipate seeing patients again in July at our new location. You may need a new referral because this is a different health care organization.

Our New Location

Corewell Health Pediatric Pulmonology - Lansing

Pediatric Specialty Care Clinic

3220 Discovery Drive Suite 210, Lansing, MI 48910

Please feel free to contact a team member of MSU CF Center at (517) 884-8600 or via the portal to address any questions or concerns you have. I understand this comes as surprising and stressful news and we will do everything we can to ease the transition.

Sincerely,

Ryan Thomas, MD

Chief, Division of Pediatric Pulmonology

Director, Michigan State University Cystic Fibrosis Center

Associate Professor, Department of Pediatrics and Human Development

Michigan State University College of Human Medicine 

AIR QUALITY ALERT!

For June 7 and 8, the Michigan Department of Environment, Great Lakes, and Energy issued an air quality alert in 28 southern Michigan counties covering much of the SE portion of the state. This is in response to the U.S. EPA’s Air Quality Index indicating that PM 2.5 is at “red” to “orange” unhealthy levels.

This air quality is a health concern, particularly for people most sensitive to particulate matter.

 For people with heart or lung disease, older adults, children, and teens it is suggested to take the following steps to reduce exposure:

• Avoid strenuous outdoor activities.
• Keep outdoor activities short.
• Consider moving physical activities indoors or rescheduling them.

For everyone else:

• Choose less strenuous activities (like walking instead of running) so you don’t breathe as hard.
• Shorten the amount of time you are active outdoors.
• Be active outdoors when air quality is better.

Live color-coded air quality conditions along with steps to protect your health can be found at the AirNow website and mobile app.

Join Us for our 1st Annual Lansing Community Walk!

Our walk will take place on 

June 10, 2023, from 9am-12pm

The 40et8 Voiture 946

2949 S Waverly Hwy 
Lansing, MI 48911-5456

What’s more fun than a morning filled with food, fundraising, and friends!

To register in advance use the link below or contact Sam Cassisis at:

517-353-2046 or emailing cassisis@msu.edu

http://fightcf.cff.org/goto/lansingcommunitywalk 

Trikafta Age 2+

The US Food & Drug Administration has approved TRIKAFTA^® (elexacaftor/tezacaftor/ivacaftor and ivacaftor) for the treatment of cystic fibrosis in patients aged 2 years and older who have at least one F508del mutation in the cystic fibrosis transmembrane conductance regulator (CFTR) gene that is responsive to TRIKAFTA!!!