Welcome

We are the Michigan State University Cystic Fibrosis Center, the largest clinical CF care center in central Michigan. Since 1990, we have delivered state-of-the-art holistic clinical care to pediatric and adult CF patients, and providing comprehensive education to families and caregivers. We are a core cystic fibrosis center, fully accredited by the Cystic Fibrosis Foundation, and our program consistently ranks as one of the top-performing CF centers in the country*.

*Based on nutritional (BMI) and FEV1 data in our children.

AIR QUALITY ALERT!

For June 7 and 8, the Michigan Department of Environment, Great Lakes, and Energy issued an air quality alert in 28 southern Michigan counties covering much of the SE portion of the state. This is in response to the U.S. EPA’s Air Quality Index indicating that PM 2.5 is at “red” to “orange” unhealthy levels.

This air quality is a health concern, particularly for people most sensitive to particulate matter.

 For people with heart or lung disease, older adults, children, and teens it is suggested to take the following steps to reduce exposure:

  • Avoid strenuous outdoor activities.
  • Keep outdoor activities short.
  • Consider moving physical activities indoors or rescheduling them.

For everyone else:

  • Choose less strenuous activities (like walking instead of running) so you don’t breathe as hard.
  • Shorten the amount of time you are active outdoors.
  • Be active outdoors when air quality is better.

Live color-coded air quality conditions along with steps to protect your health can be found at the AirNow website and mobile app.

Join Us for our 1st Annual Lansing Community Walk!

 

Our walk will take place on 

June 10, 2023, from 9am-12pm

The 40et8 Voiture 946

2949 S Waverly Hwy 
Lansing, MI 48911-5456

 

What’s more fun than a morning filled with food, fundraising, and friends!

To register in advance use the link below or contact Sam Cassisis at:

517-353-2046 or emailing cassisis@msu.edu

http://fightcf.cff.org/goto/lansingcommunitywalk 

 

 

Trikafta Age 2+

The US Food & Drug Administration has approved TRIKAFTA® (elexacaftor/tezacaftor/ivacaftor and ivacaftor) for the treatment of cystic fibrosis in patients aged 2 years and older who have at least one F508del mutation in the cystic fibrosis transmembrane conductance regulator (CFTR) gene that is responsive to TRIKAFTA!!!

Bonnell Foundation Education Day

Bonnell Foundation Education Day

Free lunch, free event, priceless information and parent mingling.  

On arrival parents will mingle. They will talk about what the CF community is advocating for, and hear from guest speaker, Diane Shader Smith. Diane will talk about the importance of phage therapy, and how it could have saved her daughter. Mallory died from CF when she was 25 years old. She talks about the diary her daughter left behind and how she made it into a book and later it inspired a documentary.

Thanks to a donation the Bonnell Foundation will pay $15 toward your gas and parking.

Register here: https://thebonnellfoundation.org/event/education-day/

 

Interval History Form

Our interval history form is now available to download if you would like to fill it out prior to your visit.  

 

Interval History Form