Dear CF Center Patients and Family Members,

I am writing to solicit input from you.  We recently met with the CF Center Patient and Family Advisory Board. We have created a list of things for us to work on including: 

• CF Treatment Timeline: A general overview of when certain medications or therapies are started in children as they get older. 
• Updates to the CF Center Website: Including the roles of the different team members and bios for the team members.  We are also working on a way to better notify people of updates on the site.   
• A template of a letter than can be sent to local health department officials and elected officials to encourage them to get access to the COVID vaccine for CF patients and family members as soon as possible. 
• CF Fighters will be ordering Aerobika’s for those who do not have one or need a replacement since they are often not covered by insurance. 

If you have any feedback regarding either these projects or other ideas for how we can work on to improve our CF Center, please let us know.  Our team is dedicated to delivering both high quality care and the best possible treatment experience.  You can email me directly at thoma477@msu.edu, email Jaime or call the center with your ideas or suggestions.  Please do not email medical questions as they will not be answered via email. 

Thank you for your input!

Ryan Thomas, MD

Assistant Professor of Pediatrics

Director, MSU Cystic Fibrosis Center

Division of Pediatric Pulmonology, Allergy, and Clinical Immunology

Michigan State University College of Human Medicine