The Cystic Fibrosis foundation is conducting a survey to better understand the community’s perspective on genetic-based therapies consisting of mRNA therapy, gene-editing, and gene therapy. As research in this area is increasing it is important that we hear from the community. This survey will assess current knowledge of genetic based therapies as well as willingness to participate in genetic-based therapy clinical trials.

Results from this survey will be used to better understand the community’s perspective and inform future genetic-based therapy research, clinical trials, and communications.

The CF Foundation is interested in hearing from all Adults with CF and their families; however, we are particularly interested in hearing from those with nonsense and rare mutations.

If you would like to participate in this anonymous, 6-minute survey, please click here by Tuesday, February 23rd, at 11:59 p.m., ET. Thank you for your time and consideration.

If you have any questions, please contact jhudson@cff.org .